Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Yes, indeed. Guys live with #EhlersDanlosSyndrome too.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

Trigeminal neuralgia Find out about trigeminal neuralgia, which is sudden, severe facial pain, often described as sharp, shooting or like an electric shock.

Ok #EDS lots of people in #Pots #Eds #Mcas support groups all saying they have #TN when I asked.

So obvs a issue for us. Given I've got the usual trifecta made seeing this hard. If you've got TMD or face pain. Heads up ⬇️

www.nhs.uk/conditions/t...

What Causes Hypermobile Ehlers Danlos Syndrome? (A Summary of Theories) What is going on with my body? … Why is this happening to me?  … Hypermobility?  Hypermobile Ehlers Danlos syndrome…what is that?  And what causes it? … Peopl…

There will soon be a new set of criteria for diagnosis and there have been several genetic discoveries recently. Still, there will always be more than one answer.

#BlogPost #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth
💕 #Wellness

Ehlers-Danlos Syndromes and Autoimmune Disease Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune di…

#IYKYK

#NewBlogPost #AutoimmuneDisease #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

This is what I treat.

#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

DAS. Zusätzlich kann es sein, dass die zahlreichen Unverträglichkeiten auf #MCAS und/oder MCS zurückgehen u. fälschlich als Allergien diagnostiziert wurden. Dabei kann es ja leider passieren, dass man am Ende gar nichts mehr verträgt.

Auf Twitter müssten wir ja schon einmal live miterleben,

Ehlers-Danlos Syndromes and Autoimmune Disease Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune di…

Yes. Both.

#NewBlogPost #AutoimmuneDisease #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

Ehlers-Danlos Syndromes and Autoimmune Disease Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune di…

Having autoimmune disease AND #EhlersDanlosSyndrome isn't all that rare. Here are some options.

#NewBlogPost #AutoimmuneDisease #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

Has anyone tried serum eye drops for long covid eye pain?

#longcovid #eyepain #mcas #dryeye

I miss my flat tummy

Being strong

Standing on my hands

Bouncing with joy

Gardening, sweating, sun bathing

Today, I miss.

#mecfs #longcovid #pots #mcas

Mast cells crucial to causing osteoarthritis Mast cells - infamous for secreting allergy-triggering chemicals - also secrete a cartilage-degrading enzyme. Blocking mast cell development, or the activity of the enzyme, protected mice from…

"Mast cells - infamous for secreting allergy-triggering chemicals - also secrete a cartilage-degrading enzyme..."

#Osteoarthritis #ChronicIllness #ChronicPain #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

Ehlers-Danlos Syndromes and Autoimmune Disease Can you have EDS and an autoimmune disease?  Both at the same time?  Does a bear leave bowel movements in the woods?  Yes.  And yes, you most certainly can have EDS and an autoimmune di…

Yes, you can have both.

#NewBlogPost #AutoimmuneDisease #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth #Acupuncture #TuiNa #LifestyleSupport 💕 #Wellness

Net 40 min. bezig geweest om bloed te laten prikken omdat niemand wist wat #MCAS is of waarom je tryptase moet meten. Uiteindelijk konden ze t wel in t bloed, maar niet in urine bepalen. Moesten ze wel 3 mensen voor bellen. Ik zat daar maar nuchter & zonder medicatie. maar Csupport & expertisecentra

Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Oh, MCAS...

#BlogPost #Spring #MCAS #EDS #hEDS #POTS #HolisticHealth #SelfCare
💕 #Wellness

Self-Care For Folks With Hypermobile Ehlers-Danlos Syndrome (Yes, You Do Deserve It) Self-care when you live with a complex disorder like EDS (especially if you have the usual add-ons like MCAS or POTS) is crucial&#…

For sure not selfish for those of us with chronic conditions.

#BlogPost #SelfCare #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #POTS #HolisticHealth #Acupuncture #TuiNa 💕 #Wellness

Recently, I've been repeatedly tagged by people who mistakenly believe my account belongs to astronaut Christina Koch.
I'm not her.
I can barely make it to the next train station, let alone into space. I'm severely ill with #MEcfs #POTS #CCI #MCAS and housebound most days.

Lipedema: What It Is, What You Can Do About It Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?&nb…

If you've got it...there's hope.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema 💕 #Wellness

Everything I read said LDN is low risk and easy to stop, but akathesia insomnia worsened my already-very-low #ME baseline for many months. I understand all meds and supplements have risks and we don't know how to tell who will react most negatively etc (especially in a population with #MCAS) 3/4

tomu nejde utect. Clovek musi sakra zodpovedne rozhodovat o kazdem jidle. Vylouceni ze socialnich interakci kvuli #MCAS a #EDS je dalsi vec. Uz pres 10 let musim byt extremne opatrna v jidle a rozhodne nejen v jidle. To neni volba, nebo fnukani, tohle jsou me utrzky kazdodenniho zivota. #delamcomuzu

Narocny vyber jidla resim denne, prakticky u kazdeho jidla. Tech omezeni je mnoho. Od reakci kvuli #MCAS, pres gastro potize vlivem #EDS, ktere zahrnuji cely zazivaci trakt. Prubeh jidla zaroven vyrazne komplikuji blokady, subluxace a skriple nervy. Musim byt opatrna, protoze pripadne zvraceni

Amy Scoggins’ ‘The Caretaker And The Warrior’: Advocating for Ehlers-Danlos Syndrome After her teen daughter was diagnosed with Hypermobile Ehlers-Danlos Syndrome (EDS), American painter Amy Scoggins decided to use her platform to raise awareness of the rare inherited disease. She…

"After her teen daughter was diagnosed with Hypermobile Ehlers-Danlos Syndrome (EDS), American painter Amy Scoggins decided to use her platform to raise awareness..."

#Artist #Art #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #SelfCare
💕 #Wellness

Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese …

Tai chi & qigong for people with #EhlersDanlosSyndrome? Yes, indeedy.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi #QiGong 💕 #Wellness

I use to feel shame as I got sicker and relied more on the internet for finding community.

That is totally gone now.

People who don’t have Long Covid will never understand what going through this is like.

Social media is a lifeline for every part of this disease.

#longcovid #mecfs #pots #mcas

Intuitive Eating vs. Mindful Eating–Which Is Better For You? (Some Tips For Folks With EDS, MCAS, &/or POTS) Have you ever thought about the difference between mindful eating and intuitive eating?  They are not the same thing, but both can be helpful approaches to nutrition when a person lives with E…

How about both?

#BlogPost #GutHealth #Nutrition #Diet #Microbiome #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare #HappyGutHappyLife 💕 #Wellness

Specialty areas graphic
What I treat most often...

#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

Self-Care For Folks With Hypermobile Ehlers-Danlos Syndrome (Yes, You Do Deserve It) Self-care when you live with a complex disorder like EDS (especially if you have the usual add-ons like MCAS or POTS) is crucial&#…

It's not selfish.

#BlogPost #EDS #hEDS #MCAS #POTS #HolisticHealth #SelfCare 💕 #Wellness

The under-the-radar disease Venus Williams, Halsey and Solange Knowles all have in common The disease, which impacts around 4 million Americans, has disrupted the lives of some of the biggest names in sports and music.

Did you know about these people and their chronic illnesses?

#EDS #MCAS #POTS #ChronicIllness #Representation #HolisticHealth 💕 #Wellness

Health coaching, Edu-coaching, Consultation: The Which and Why and When for People with Ehlers-Danlos Syndrome Working with a health coach can be one of the most affirming, valuable, inspiring things you can do when you decide that yes, it i…

Which resonates most for you?

#BlogPost #HealthCoach #EduCoach #Consultations #ChronicIllness #ChronicPain #EDS #hEDS #MCAS #HolisticHealth 💕 #Wellness

Mittwoch was anderes/falsches im Essen. Folge Nierenschmerzen, Muskelschwäche, totaler Horror. Letztes Jahr hielt das ein halbes Jahr an! Passiert immer mal, meist so um Ostern herum oder so. Grauenvoll! Einmal was Falsches gegessen halbes Jahr Horror. Hab nur 1 Niere😭😭😭 #MEcfs vermutlich auch #MCAS

#LiegendDemo #mecfs #cureME #fightME #demonstration #longcovid #Postcovid #Postvac #PAIS #MCAS #POTS #Dysautonomie #EDS #CCI #SFN #FQAD #disability #Ostern #Danke