Tonight, again, I pray for sleep for him. For his body to find some mode of recovery. This barely scratches the surface of what we can't get the Medical community to understand, let alone the Disability office, which denied his 1st request. #InvisiableIllness #me/cfs #chronicillness

For the record, filling out any paperwork for SSD( in the US) has to be the most confusing and never-wrecking paperwork one can do. The fact that it can take up to 3 years to work one's way through the whole system isn't helpful either. #ChronicIllness, #ChronicPain, #InvisiableIllness #mecfs #POTS

Hubby woke up in a severe crash. Muscle spasms, chills, racing heart, & high BP. I watched helplessly, watching him shiver & twitch in uncontrrollable pain. The chills & spasms subsided, & BP is back ⬇️ Waiting on HR to return to norm.
#ChronicIllness, #ChronicPain, #InvisiableIllness #mecfs #POTS

#ChronicIllness #ChronicPain #rareDisease #InvisiableIllness
Do any of my Chronic Illness folks have #HereditaryAngioedema ? Anyone w type 3 (normal C1 estrace)?
#HAE is rare and #HAE-nC1I is a sliver of rare.

Curious abt how long it took to get the diagnosis & journey w/getting meds. Thx.

Not bad for an achy "old" #CronesofAnarchy
#ChronicIllness,
#ChronicPain,
#rareDisease,
#InvisiableIllness
#asthma
#fibromyalgia
#fibro,
#Migrane
#arthritis
#OsteoArthritis
#SelfManagement
Posted from flat on my bed after today's 4863 step walk. Pushing Through, with periods of rest and 🥬💨🍬🍫.

#ChronicIllness, #ChronicPain, #InvisiableIllness

A soft beige background with a pink infinity symbol at the top, a gentle nod to neurodiversity. Beneath it, the words offer comfort: “If you've ever felt broken for being different or having a disability. You deserve better; you've always deserved better.” The text is in a deep purple font, grounded and warm. At the bottom, the website fluttertobloom.com is noted. This is a quiet, loving reminder for anyone who’s ever felt unseen — you’ve always been worthy. Always.

“If you've ever felt broken for being different or having a disability, you deserve better; you've always deserved better.” 💓 #Disability, #InvisiableIllness

#Signalboost #AcademicSky #Research #ChronicIllness #rareDisease #Cancer #ChronicPain #InvisiableIllness #mecfs #cfs #pwME #MEeps #MCAS #POTS #EDS #EhlersDanlos #hsd #hEds #fibromyalgia #CRPS #fibro #LongCovid #pwLC #lupus #Migrane #ChronicMigrane #MigraneChat #NEISvoid #MicroSky #RNASky 🧪

if U make it happen!!!

#Helpsky
#Disability
#ChronicPain
#MentalHealthMatters
#InvisiableIllness
#Scoliosis
#HelpNeeded

PayPal: www.paypal.me/HarleyQuinn420

💕💸

@fairshare.help
@mutualaidvoid.bsky.social
@bfitzinar.bsky.social
@diananightbloom.bsky.social
@fabforward.bsky.social

Can anyone in the #chronicillness world think of anything other than #IBS, where the gut would switch between motility being too fast and too slow? making the switch every few weeks.
After 20 years, im looking for needle in a haystack diseases.
#ChronicPain #rareDisease #InvisiableIllness

Would you know how to check someone, or your pulse from the neck? 
 #ChronicIllness, #ChronicPain, #rareDisease  #InvisiableIllness #HeartSky

February is National Heart Month 
#EduSky #ChronicIllness, #ChronicPain, #rareDisease #InvisiableIllness #HeartSky

No complaints, but isn’t #InvisiableIllness spelt wrong? Shouldn’t it be #InvisibleIllness?

For more information on how to work with your child's school see - https://www.wellatschool.org/  
#disability #InvisiableIllness
 #ChronicIllness

#Disabillity  #InvisiableIllness #mentalhealth 
#ChronicIllness #rareDisease #physicalhealth 
,

It's getting cold this weekend so this fire on your timeline is a reminder to keep warm 
#EduSky  
#ChronicIllness #ChronicPain #rareDisease #InvisiableIllness #immunesystem

#Disability  #ChronicIllness #rareDisease #InvisiableIllness

,

📌 #ChronicIllness Pinned Post 📌

This feed pulls in posts with the keywords of #ChronicIllness, #ChronicPain, #rareDisease, and #InvisiableIllness

This feed can be found at bsky.app/profile/did:...

Other keywords the feed pulls in can be found in the following thread below.

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How do you all keep hope when you can no longer stand living with the debilitating symptoms of your chronic illness? 😢

#ChronicIllness #rareDisease #InvisiableIllness #Disability

Invisible Struggles Women, Chronic Illness, and a Healthcare System That Doesn't Listen

Invisible Struggles: Women, Chronic Illness, and a Healthcare System That Doesn't Listen

#ChronicIllness #rareDisease #InvisiableIllness #healthcare #womenshealth

vocal.media/potent/invis...