Scroll to the bottom for an email template with key points. There is a precedent of UK hospitals refusing to follow expert guidance on ME & torturing, starving, & even killing young women with severe ME like Savannah
#SaveSavannah #SevereME #DontLetMEDie
Can you help in any way please:
@actionforme.bsky.social
@meassociation.org.uk
@thereforme.bsky.social
?
#DontletMEdie #SevereME #JusticeForME #UnitedForME
💙💙
Two hearts for the two people who I’ve heard about today that have died from ME.
So many don’t realise that ME can be fatal.
RIP
#ME/CFS #SevereME #DontLetMEdie
#ME #pwME #MECFS #SevereME #VerySevereME #LongCovid #EndMEcfs #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #StillTheSaME #StandByMEcfs #StillSickStillFighting #NotRecovered #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME #BerlinBuyers #IACC #MEKills #DontLetMEDie
YET MORE stress & no answers to our questions from East Sussex NHS; & update on Karen Gordon’s Hospital Stay chng.it/k6752MwWTg via #UKChange
#ME #MECFS #LongCovid #SevereME #VerySevereME #MillionsMissing #MEAction #TeachMETreatME #GreatestMEdicalScandal #ThereForME #DontLetMEDie #MEawareness
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
Please sign to help Karen Gordon, a very severe ME patient who needs our help! 💙
www.change.org/p/save-karen...
#ME #MECFS #LongCovid #SevereME #VerySevereME #MillionsMissing #MEAction #TeachMETreatME #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME #DontLetMEDie #MEawareness #MEawarenessmonth
Picture of a woman with severe ME whose legs are extremely bony and skinny due to muscle wasting
🚨 TW 🚨
I used to hike miles. Now my legs look like this due to #SevereME. I lost over 20% of my body weight in the last year despite eating 1000kcals more than I use daily. I fear I’m quite literally wasting away.
#May12 #WorldMEDay #MillionsMissing #MECFS #LongCovid #DontLetMEDie #TeachMETreatME
White text over black: Donate & share mutual aid fundraisers for people with M.E., Long Covid, & other infection associated chronic conditions. Now more than ever, mutual aid is a necessary, lifesaving, revolutionary practice. If you’re privileged enough to have disposable income, make giving to mutual aid a regular commitment. If you can’t donate, share & interact with posts to boost engagement!
Follow @meactnet.bsky.social @thesicktimes.bsky.social @openmedf.bsky.social @polybiorf.bsky.social and co. ❤️and comment, share, amplify
#MillionsMissing #WorldMEDay #MEAwareness #MECFS #DisabilitySOS #pwME #GreatestMEdicalScandal #DontLetMEDie #SevereME #MutualAid #LongCovid #IACC
(4/4)
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
A busy day!
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
On a light red background, text that reads: "When I talk about social abandonment in M.E., I don’t mean the loss of contact and support from many friends and relatives (though that is also a part of the story, as with perhaps all chronic illnesses and even acute ones.) I mean that Myalgic Encephalomyelitis is a devastating and neglected neuroimmune illness with no FDA-approved treatments for which almost nobody but the most affected advocate for progress in research and care. People with M.E. don’t die quickly, but M.E. destroys lives, destroys the possibility of engaging with the world, and eventually #MEkills. Will you join MEAction, World ME Alliance, and other M.E. and IACC orgs in their calls for action on May 12, World M.E. Day? The #MillionsMissing need healthy allies to recognize this is a global health and human rights scandal and join the fight for change."
Friends, please follow @meactnet.bsky.social and other #MyalgicEncephalomyelitis #MECFS #LongCovid #IACC orgs and join in #WorldMEDay #MillionsMissing actions in May and beyond ❤️.
#GreatestMEdicalScandal #TeachMETreatME #pwME #SevereME #MEKills #DontLetMEDie #JohnVsJonVsME
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
#SaveCarlasLife #ExposeMENow #SaveMillie #DontLetMEDie #BringMillieHome #MilliesevereME
#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #longhaulers #MEcfs #MyE #CFS #ME #pwME #Fibromyalgia #fibromyalgie #millionsmissing #LongCovid
#BeAllYouCanBe
