Exhausted from the push-crash cycle? Check out "Living Well with #Fibromyalgia & #MECFS : A Practical Online Course." One supportive community. Built from lived experience. Designed for warriors www.eventbrite.co.uk/e/living-wel...

#womenshealth #chronicillness #women

Why I Can’t Just Meet You for Dinner The Reality of Post-Exertional Malaise

"The cruel irony is that #working might be preventing the rest & #pacing that could potentially improve their condition. But not working means poverty..& erosion of identity..There’s no good #choice here. Just impossible ones.": buff.ly/VpkMbuj

by @darthfoo.bsky.social
#ChronicIllness #disability

29 Best Tips on How to Cope with Isolation at Home (from People Who Have Done and Will Do This All Their Lives)

"There will be days that u get a lot done &..also..days that there yr esp fatigued, sad..& #anxious to the point of #BrainFog that y can’t work through. Know that whatever you do – & don’t do – is good enough. - ill_to_well.": buff.ly/IqgNKfR

#ChronicPain #MondayBlogs #isolation #MentalHealth

I May be Chronically Ill, but I'm Also Chronically Resilient — Angela Ng of "Pod of Life" Shares Her 3Rs Approach to Resilience on A Chronic Voice .com. Read the blog post now.

"I am a person who loves life – I like to stay active & travel. It frustrates me when the bad days hit. I’m not only rolling around in pain while under heavy sedation, but I lose time to the things that I had wanted to do.": buff.ly/cIpQ60R

#ChronicPain #InvisibleIllness #NEisVoid #disability

Solitude Is a Skill - by Elizabeth Weingarten - Behavioral Scientist We all need different amounts of social time and alone time. If the solitary life comes less natural to you, what should you do?

“Better #emotional regulation can emerge from learning how to #introspect, or the ability to enjoy & be #curious abt your inner workings..The more we can become comfortable with that #SelfDialogue, the more rich #solitude will be for us.": buff.ly/1eai1T9

from @behscientist.bsky.social
#LifeSkills

A String of Bad Days (and What Happened When That Good Day Finally Came Along)

"Our #bodies heal at its own pace, to a rhythm that must be respected. So go lay your head down, and rest up to your fullest. Because when that good day comes around, you’re going to be amazed at all that u can actually #achieve.": buff.ly/h3eyXmb

#resting #ChronicIllness #healing #pacing #SelfCare

What lie is your brain telling you right now? Sometimes it keeps us small. Trapped in fear. Frozen by pain. But you can gently rewrite the story. One small thought at a time. You are not alone💜 Learn more www.tiktok.com/@diary_of_a_...

#InvisibleIllness #Spoonie #ChronicIllnessWarrior #fibrowarrior

Ever had your mind go completely blank in a high‑pressure moment
Sometimes that’s a mix of cognitive dysfunction and sensory overload showing up at the same time…
www.facebook.com/stories/1048...

#cogntivechallenges #mecfs #sensoryoverload #fibromyalgia

When #chronicillness changes everything, the way we think about goals has to change too. In Part 2 of this series, I sit with existential questions I never expected to face/share a gentle framework for setting goals that honor your limits chikocfm.substack.com/publish/post...

#Fibromyalgia #MECFS

The daily battle between cognitive malfunction and mindset is real. For #chronicillnesswarriors, it can feel 10X harder to push through.
When your brain says “nope,” what helps you get going? Learn more about my experience today vm.tiktok.com/ZNRqCPuvD/

#fibromyalgia #mecfs #cognitivechallenges

If I removed all pressure to achieve or produce, what would still feel worth waking up for?" That question changed how I think about goals with chronic illness.
Part 2 is live. Read here > chikocfm.substack.com/p/part-2-goa...
#chronicillness #fibrowarrior #mecfs #invisiblechronicillness

If this week stretched you, softened you, or taught you something new about your strength, you’re not alone. Healing, growth, and self‑compassion all happen in the quiet moments you rarely give yourself credit for.

vm.tiktok.com/ZNRVvFcsv/

#fibrowarrior #spoonies #mecfs #women #chronicillness

Progress isn’t measured by perfection. It’s measured by presence. By showing up in the ways your body and energy allow. By honouring your pace. By surviving the days that felt impossible and celebrating the ones that felt lighter.🫶💜
vm.tiktok.com/ZNRVvFcsv/

#fibrowarrior #spoonies #mecfs #women

Happy Friday, beautiful soul.You made it through another week; however messy, however slow, however heavy it felt. You’re still here, still trying, still choosing yourself in ways big and small. And that is everything.🥳🫶💜
vm.tiktok.com/ZNRVvFcsv/
#fibrowarrior #spoonies #chronicillnesswarrior #mecfs

You‘re not failing chronic illness warrior. You’re fighting. You’re strength is quiet but real.
vm.tiktok.com/ZNRVVgk8v/

#chronicillness #fibromyalgia #mecfs #spoonies

3 Types of Chronic Pain that Sound Bearable, but are Not - Read on A Chronic Voice .com

"Simple tasks such as hailing a cab or fastening your bra question your physical #abilities & mental stamina - your status as an #adult #human being. Forget about ‘light’ exercises — you have trouble even walking to the bathroom.": buff.ly/SFplGZy

#MondayBlogs #ChronicPain #ChronicIllness #disabled

If You Could See MS – Part 2 The Horror Sequel You Can’t Unsee Part 2 of “If You Could See MS” drags you deeper into the neurological horror of living with multiple sclerosis. Raw, furious, and darkly funny—this isn’t feel-good fluff. It’s blood, spoons,...

“ #MS isn’t just some misunderstood condition that makes you “a bit tired.” It’s a chronic possession. A #neurological horror that turns your own #body into a traitor.”: buff.ly/Ggg1Ivn

by goblinbloggeruk
#ChronicIllness #ProgressiveDisease #MultipleSclerosis #disabled #NEisVoid

Grieving the Life That I Will Never Have (Due to Chronic Illness and Disability). (A collage of four photos, featuring from top left to bottom right: close-ups of a map, a woman hurrying across a zebra-crossing, dressed in office wear, people clinking glasses of alcohol, and a mother lifting her child up in the air with a smile on her face.

"We hear.. #advice that emphasise the importance of planning for your #future. For your #retirement, for your family, for emergencies. But we can’t even #plan for tmr, what more..5 yrs? The #emergency is happening right here, right now.": buff.ly/LhF3Oig

#MondayBlogs #NEisVoid #disability #spoonie

#fibromyalgia #chronicillness #mecfs #chornicpain

Happy Monday, #ChronicIllnessWarriors, I hope the week has started off well for you as it being kind to you so far. If not wishing you ease of symptoms. Do checkout my latest blog post open.substack.com/pub/chikocfm... Look forward to learning more about your experience. #fibrowarrior #mecfs

Happy Friday, warriors. 💜 Real talk: what does your weekend actually look like? No filters. No pretending. I just published a new blog post where we talk about rest, guilt, and giving ourselves permission to pause.👉 Read it here: open.substack.com/pub/chikocfm...
#fibromyalgia #chronicillness #mecfs

Non very signs of #chronicpain #fibromyalgia

#chronicpain #fibromyalgia

My Recovery Time for Simultaneous Bilateral Patellar Tendon Rupture — What happens when you have Lupus, and are on long-term steroid therapy.

"To me, it was just part of a regular #Lupus or #Sjogrens #PainFlare. That is a huge problem with chronic, #autoimmune disorders..You often get so used to living with pain that you sometimes don’t notice when a pain is ‘not normal’ anymore.": buff.ly/Tpp5EEN

#ChronicPain #MondayBlogs #disability

I feel nothing. I feel weight. The weight of nothing bearing down on my chest, crushing against my lungs. Breathing requires conscious effort, as my body has forgotten its natural rhythm.

"I feel nothing. I feel weight. The weight of nothing bearing down on my chest, crushing against my lungs. Breathing requires conscious effort, as my body has forgotten its natural rhythm": buff.ly/04DLdQe

#depression #MentalIllness #ChronicPain #MondayBlogs #NEisVoid #disabled #BadDay

You’re allowed to move gently. You’re allowed to start again. Realign, reset, and step forward with intention. You‘ve got this, at your own pace Fellow Warrior🫶💜
vm.tiktok.com/ZNRXxt2VT/

#chronicillness #fibromyalgia #purposedrivenlife #womenshealth #yourwhy

This week, lead with kindness toward yourself. Release the regrets, hold onto your purpose, and let your vision guide you through the stressors.
vm.tiktok.com/ZNRXxt2VT/

#chronicillness #fibromyalgia #purposedrivenlife #womenshealth #yourwhy

New week, new alignment. A fresh chance to reset, breathe, & move with intention. Whatever last week drained from you, let this week pour back into you.
Choose softness.Choose courage. Choose the version of you that’s still becoming.
vm.tiktok.com/ZNRXxt2VT/

#chronicillness #fibromyalgia #purpose

Diary Of A Fibro Warrior (@chikocfm) Easter weekend is here. 🐣🌼 A soft reminder to slow down, savour the sweetness, and give yourself something that feels good. Whether it is rest, chocolate, peace, or a moment just for you, it all coun...

We spend so much time gifting others our time, energy, and spoons. This Easter, what if the most radical thing you did was gift something back to yourself? Not as an afterthought. But as quiet self compassion. 💜
substack.com/@chikocfm/no...

#Easter #SelfCompassion #ChronicIllness #Spoonie

Spring Reset: Nothing to Lose, Everything to Live For?
Living with a #chronicillness taught me something unexpected: when you’ve been bedbound, scared, & unsure if life will ever feel normal again. You stop fearing the things that once held you back www.tiktok.com/@diary_of_a_...
#fibromyalgia