Neurodiversity Celebration Week! #neurodivergent #neurodivergence #nd #autism #adhd #audhd #hiddendisabilities #invisibleillnesses #endometrilsisawarenessmonth #neurospicy #comorbidconditions #clusterconditions #pots #pcos #hypermobilespectrum #spoonies #march
“Perhaps the most powerful way #therapy can support those with #InvisibleIllnesses is by helping to reconcile the #mind with the #body – offering a space to make sense of their experience through validation & compassion.”: buff.ly/b4IilS1
from @psyche.co
#disability #ChronicIllness
On the 12th day of Christmas my chronic illness gave me: Twelve broken spoons Eleven friends confused Ten doctor's guessing Nine symptoms swirling Eight joints o'cracking Seven heating pads glowing Six naps required Five fatigue waves Four meds to swallow Three cancelled plans Two aching joints And a flare that won't let me be
Take care of yourselves, my fellow #spoonies and much love!
#InvisibleIllnesses
#NEISvoid
Two people walking together, one with a walking frame, one with an umbrella.
My latest article for @theroompsy.bsky.social is live 😊 This month I'm talking about #HiddenDisabilities and #InvisibleIllnesses. I'd love to hear what you think - any shares and comments on the article are so appreciated ♥️
www.theroompsy.com/the-green-space-well-being/you-dont-look-sick
#wellbeing
New Doctor: Can you give me a brief description of your medical history? Me: *a picture of cords and wires pulled out of big computer servers.*
New Doctor: Can you give me a brief description of your medical history?
Me: *a picture of cords and wires pulled out of big computer servers.*
#Medicalhistory #doctor #invisibleillnesses
Screenshot of my post on my Facebook page… “Tomorrow/Monday, I will attempt to act well enough - pretending that the nonstop chronic pain and fatigue and weakness and burnout and anxiety and depression and negative self-talk and self-doubt and stress and confusion and everything else that comes with being chronically ill and in excruciating to debilitating chronic pain - so I can get up, get cleaned up and get to my local pain management appointment so we can discuss the same things that have been discussed numerous times before and I can leave the appointment knowing nothing new and having no new concrete plans for achieving true, meaningful pain relief. I’m not being negative. I’m being real. I sure hope tomorrow’s appointment proves this wrong. I would absolutely love to be wrong about this…”
“No Expectations, No Disappointments.”
Scene of a patient and a doctor sitting across from one another at the doctor’s desk talking about pain management…
#Pain #ChronicPain #PainChangesPeople #ChronicPainChangesEverything #UntreatedPainIsTorture #Fibromyalgia #MenGetFibromyalgiaToo #PainManagement #INeedRelief #YourPainMatters #MyPainMatters #ButYouDontLookSick #InvisibleDisabilities #InvisibleIllnesses #InvisiblePain
"“Normal” test results don’t mean I’m okay. – #InvisibleIllnesses live between the lines of standard blood panels and scan reports. Please listen to my story, my #body is telling – even if the data isn’t screaming it.": buff.ly/KmjrawU
#healthcare #ChronicIllness #NEisVoid
"Individuals with #InvisibleIllnesses often don’t think of themselves as #disabled, until their #illness or #disability is having a profound impact on their life, as they feel..not ‘disabled enough’ to call themselves disabled.": buff.ly/R0yHk4h
by @HannahEDeakin.bsky.social
#stigma
You are not lazy. You are living with an illness that demands more from you than anyone can see. Vis themigrainenetwork
Dave Berry quote "I'm a big believer in anesthesia. I think it should be used for every medical procedure, including routine physicals. I'd like to begin knocked out while I was still in the doctor's office waiting room and not regain consciousness until everything is over, ideally in my car, with no memory whatsoever of what happened."
Consigned, every chronically ill patient.
#InvisibleIllnesses
#NEISvoid
#MedicalTrauma
Via positivityinpain Image of vintage painting with a woman reclining and a man next to her. Him: You told me you're interesting Her: I said I was into resting. Invisible illness meme humor
I feel seen.
#NEISvoid
#InvisibleIllnesses
helenawren.substack.com/p/book-revie... #spooniewriters #chronicillness #chronicillnesswriters #spoonieauthors #invisibleillnesses #amwriting #writingcommunity
"You're don't look sick" Thanks. That's the goal. But here's what you don't see: I cancel plans I desperately want to attend. I rest for hours after a shower. I forget basic words mid sentence. I grieve a version of myself that I barely remember. I fight every day for a body that doesn't cooperate. It's not just tired. It's chronic illness.
Via adamfare1996 Many disabled people spend time on social media. Because it's a way of passing the time, finding some connection, and advocacy. When we can't do much or anything else, it gives us something.
I think one of the worst parts of having a chronic illness is how it sometimes just breaks you. You can have several bad days in a row and handle it fine, then one day you lose it because you've gone so long taking it that you eventually get to a point where you can't take it anymore. After a period of inconsolable grief, you pick yourself up and begin the cycle again. Via mybodyistryingtokillme
Via Positivity in Pain Image drawing of a raccoon in a cowboy hat This body came with a lot of terms and conditions I did not agree to.
Which button to push? After having a 'Good' pain day. Button 1: completely over do it and be bed bound for weeks after. Button 2: Do nothing. Have a bad day tomorrow anyway.
Which button to push?
After having a 'Good' pain day.
Button 1: completely over do it and be bed bound for weeks after.
Button 2: Do nothing. Have a bad day tomorrow anyway.
#Chronicillnesses #chronicpain #invisibleillnesses
Via cat mat Can we just take a second to acknowledge how absolutely traumatizing and terrifying it is to lose your health? Feeling your health decline, not knowing if you'll get worse, but knowing the permanency of your new reality is scary. Often, we don't hear about the fear that comes with a health decline. We are praised fir being strong and enduring so much. We try to keep going despite the terrifying feelings knowing that there's no going back from this. There's a lot of trauma we face, a lot of grieving, and a lot of repressed fears. So, I'm here to say that these feelings are valid, and you're not alone.
It is a lot to process, no matter how many years in you are.
#NEISvoid #InvisibleIllnesses
#ComplexRareDiseases
Invisible illness meme A circle of colorful spoons on sand. Spoons are symbols of energy for the disabled.
We really need a crowd funding source for spoons deficiencies. #Spoonies
#InvisibleIllnesses
Comment below with your tips and tricks for getting out of the fog!
#AntiphospholipidSyndrome #APSAwareness #GoBurgundy #APSMatters #APSFA #apsawarenessmonth #apsresearch #WTD25 #raredisease #charity #donate #brainfog #invisibleIllness #invisibleillnesses #spoonielife #spoonie #raiseawareness
Doctor: You have to learn to listen to your body! Me: oh, we're not on speaking terms. Invisible illness meme
There may be occasional cursing involved 🤣
#InvisibleIllnesses
#NEISvoid
Via caffeinatedoossum Do these symptoms interfere with your daily activities? Bitch these symptoms ARE my daily activities, wym!
Especially when 15 symptoms are going off at once, and that's just the #POTS
#NEISvoid #InvisibleIllnesses #Migraine #PositionalOrthostaticTacycardia
#chronicillness
#disability
#invisibleillnesses
I have a question. Does anyone experience lightheadedness and vertigo ONLY when you shower? I’ve gotten it so bad that I no longer shower when no one’s home. I can’t take baths because my ability to get in and out of the tub is bad. I’ve adjusted 1/2
13/
Conclusion:
“We should not underestimate the power of doctors saying ‘I believe you’ to patients with multiple invisible symptoms, and ‘I am sorry for what has happened in the past’ if they had a difficult road to diagnosis. (contd).”
#invisibleillnesses #hiddenillnesses
7/
“More than 80% of patients given a psychosomatic or psychiatric misdiagnosis reported that the misdiagnosis had caused them to distrust doctors at the time and had damaged their self-worth.“
#chronicillness #invisibleillnesses #hiddenillnesses #chronicallyill
Why is it so hard to live with chronic illness? If I'm resting, I'm lazy If I go and have fun, I'm faking If I talk about any pain, I'm overreacting If I say nothing, I'm lying If I try to raise awareness, I'm attention seeking If I keep to myself, then I'm not being open and honest Via spoonfulofchronic
What an honor to have @fanbasepress.bsky.social's RIPPLE EFFECTS: THE DELUXE EDITION listed alongside these incredible titles for this year's IPPY Awards!
#GraphicMedicine #InvisibleIllnesses #InvisibleDisabilities
Purchase Link: fanbasepress.myecrater.com/p/46638558/r...
"Individuals with #InvisibleIllnesses often don’t think of themselves as #disabled, until their #illness or #disability is having a profound impact on their life, as they feel like an #imposter or not ‘disabled enough’ to call themselves disabled.": buff.ly/GhOn2Fc
by @hannahedeakin.bsky.social
It’s time to be seen,
to be heard,
to be accepted for who we are.
Read today’s blog about #invisibleillnesses 📚💙
thedreamersbookshop.myshopify.com/blogs/nieuws...
#invisibleillness #invisibledisabilities #invisibleillnesswarrior #invisibleillnessawareness #chronicillness #booksky #mentalhealth
Underappreciated strengths ADHDERS often overlook
Chronically ill girlie's overdoing it everytime they get the slightest bit of energy about to pay for it for the next ten days
You praying at night Religious scrupulosity OCD You didn't pray sincerely enough- do it again and untill it feels right or god will punish you
