MS Isn’t Cancer, But It’s Its Own Kind of Killer Living with MS means living with pain no scan can explain. After a biopsy turned red patches into a nerve firestorm, I’m left battling bowel agony, brain fog, and the kind of truth no doctor’s note…

“I hold back vomit with every breath because the world tilts and the noise in my head goes white‑hot. I wish I were anywhere else. I wish I were normal. I wish for a million useless little things.”: buff.ly/aFyvUbf

by goblinbloggeruk
#tinnitus #ChronicPain #MS #disability #ChronicIllness #NEisVoid

I have tried soooooo many supplements to help alleviate any of my symptoms #MECFS #NEISvoid and do you wanna know the thing I tried that I had the most success with? (But it’s inconsistent). Nicotine patches 😲

#NEISVoid

#TrustMeTheFalseProphet documentary is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMarathon

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Then, let the DMs FLY! 🤓

#CovidCautious
#CovidCuties
#SpeedDating
#NEISvoid
#Disabled
#Spoonie
#pwME
#LongCovid
#pwLC

The #BobtheDragQueenThisIsWild, stand up special, just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#NEISvoid #mecfs #ForTinu #spoonie #lgbtqiaplus #comedy #ChronicPain #ForTinu #SexTalkSunday

#TheGreatNorth is playing in the #ChronicLoaf stream this morning

mzelo.com/app/rooms/ch...

#animation #cannabisculture #DisCo #ForTinu #spoonie #neisvoid #ChronicPain #morningcartoons

Pretty sure I have strained my piriformuses(piriformi?). On both sides.

So painful.

#NEISvoid

Egg scramble consisting of eggs, green onions, parsley, and triple sharp cheddar cheese.

I love my new pan. It's small but not tiny, and actuqlly nonstick (unlike that other one i bought recently). Makes Hella good eggs, too.

#cptsd
#sunday
#selfcare
#neisvoid
#bipolarsky
#recoveryposse

got some interesting responses going on in the background. I finally found some people who were willing to look at what I've compiled. this doesn't mean anything other than that, ofc. I still need to prepare for all possibilities. I still need help.

gofund.me/78374843b

#NEISvoid #signalboost

To exist in housing that isn't directly oppositional to every cell in your body is too much to ask, and that is somehow not supposed to make a person feel like shit? Not add stress to further flare medical conditions?

Just try and reset your whole nervous system 4 times a fucking day? 😵

#NEISvoid

Makeup seemed frivolous; now I have lupus, it’s liberating | Psyche Turning Points I’d dealt with many illnesses. But when lupus left scars on my face, my suffering was suddenly visible

“I sit there as [my #dermatologist ] numbs, then carves out a piece of my #face. The tugging & sewing lurch my stomach. Blood, guts, needles, birthing – none of that bothered me, but this tears me apart.": buff.ly/15GsYK9

from @psyche.co
#biopsy #lupus #NEisVoid #makeup #identity #ChronicIllness

I'd probably be dead if I weren't a singer. Not just the lung disease, either... it's my primary tool for catalyzing catharsis.
#NEISVoid #ActuallyAutistic #AutisticAppreciation #MusicSky

4/
(Contd)
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty

#NEISvoid

Chronic Illness Memes (Tell Me You’re Chronically Ill Without Telling Me You’re Chronically Ill)

"You need 5 minutes to mentally prepare yourself just to sit up, when you need to use the toilet at night." - Pesky #ChronicPain problems.... Can you relate to any of these #memes ?: buff.ly/2rh0x4p

#NEisVoid #spoonie #ChronicIllness #disability #awareness #ChronicLife #arthritis #Lupus #sjogrens

S1E1 of #TheXFiles is playing now in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#SciFi #insomnia #DisCo #ForTinu #spoonie #neisvoid #ChronicPain #cannabisculture #90sNostalgia

Boosting
#NEISvoid #PwME #LongCovid #MEcfs

Reimagine one of your physical disabilities as a superpower.

I have EDS. I'd basically be Monkey D. Luffy.
#NEISVoid

The Road to Recovery is the Longest of Them All — Read on A Chronic Voice .com

"one of the deadly #AutoimmuneDiseases that I live with is #AntiphospholipidSyndrome. It tends to hum along in the background most days, but when it strikes, it aims for the kill.": buff.ly/NqIh84f

#ChronicIllness #BloodClots #InvisibleIllness #disability #recovery #ChronicPain #NEisVoid

These temperature swings are awful on my joints. Cuddling up with an ice pack AND a heating pad! 😓 #NEISvoid #DisabledLife #SpineInjury #MeningealCyst #Sciatica #JointPain #RheumatoidArthritis

Tried a new sleep med last night. I’m still trying to wake up 16hrs, 1 prescription long-acting stimulant, & a Redbull later.

I guess I can’t complain that this one doesn’t work! 🙃

#neisvoid

[Medical diet etc]

my ability to do basic tasks is really so much worse than usual when my body's very "ehhhh" about digesting and absorbing nutrients

this is extremely logical and obvious, but it's somehow a shock during every flare

#NEISvoid

You would THINK knitting would be a nice quiet hobby I could indulge in while resting from over-exertion. So someone please tell me why my heart rate is over 110 while I fucking do it!! Rrgh. Fail-body! #NEISVoid

day 9 of the campaign. haven't had any new contributions for some time now. waiting on a key response atm.

I hope to make some more progress in the right direction. any help to that end would be greatly appreciated.

gofund.me/c252eb04d

#signalboost #NEISvoid #helpfolkslive #mutualaid

Living with chronic pain is so exhausting. Is today gonna be a good day? Am I going to be able to work? Can I brush my hair? What's worse is that no one sees your disease so they think you're faking.

Something I've been noticing lately is that when I take an adequate dose of my pain meds, if most of the pain relieved I have more energy and don't feel nearly as tired as I did before I took it.

Just being in #pain is fatiguing ALL BY ITSELF, even if you've done nothing all day.

#NEISvoid

S2E1 of #Cross just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#NEISvoid #mecfs #DisCo #ForTinu #spoonie #ForTInu #insomnia #ChronicPain

Sharing my be-crowed sky for those who can't be outside.

#MECFS #LongCOVID #NEISvoid

evening post. there's something really promising happening in the background. I won't give details yet, but just know it's good.

what I can say is that it doesn't stop me from needing to crowdfund. I haven't had any donations for a bit now. hoping to change that.

gofund.me/17f0bf9b7

#NEISvoid

#TheComeback is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#NEISvoid #comedy #mecfs #DisCo #ThrowbackThursday #spoonie #MutualAidMarathon

I am in the worst mood

I did things out of order & now I can’t find several things I use throughout the day, & I’m too exhausted to look for them

I tried to give myself a little gift by singing a little bit & got a series of painful coughing fits instead

#neisvoid