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Hashtag
#Spoonsky
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Today's shooting/fiery pain kept me in bed & is making sleep difficult. The upside to that, is that I got to hear owls hooting from my open window. Merlin identified them as great horned owls (totally common in my city). It was still exciting for me tho.π¦π #Spoonsky
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Daily Spoon Count 5/10
Pain Level 3
Therapy today. Therapy is what has helped me move forward with my life while keeping a foot in the past to fight for justice for my late wife. It has given me back my ability to function through the #grief. Be kind to yourself and others today #widowed #spoonsky
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hey fellow chronic pain havers, what do you do to distract from your bad pain days? for me music seems to be the only thing that lessens the pain for a while. Id like to get an idea of what others do so I can try myself #chronicpainsky #spoonsky #chronicpain
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All spoons are good spoons.
Bought from an Argentine woodworker at a market in Salta.
Support your local dreadlock wearing tattooed craftsman.
#spoonsky
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NON CHRONIC PAIN 0-10 PAIN SCALE Severity Description of experience 10 Hospitalization incontraman You're screaming Required 9 Severe Pain 8 Extreme Pain 7 Intense Pain 6 Unmangeable 5 Distressing 4 Moderate incoherently and strangers have called 911 on your behalf. Intolerable. You can't stop crying or shaking. You cannot walk or talk. Excruciating. You're unable to care for yourself. It's hard to think of anything but your pain. You can;t concentrate. The pain keeps you from doing most activities. You think about your pain all the time. You're avoiding many activities. You think about your pain most of the time. It's hard to suppress outward signs of pain. You are constantly aware of your pain. You continue to do most activities. CHRONIC PAIN SCALE Severity Description of experience Any non chronic pain person around you is scared. You're scared. You might pass out from your pain. You rather pass out. This is a bad 10 place. You are scared. Nothing that have been prescribed to you h
Some of yβall #spoonies #chronicpainsky #spoonsky might find this useful, and everyone else might find itβ¦ enlightening.
(Have also long joked that they also need to ask, after getting your pain scale number is, βand.. have you ever given birth without epidural? Ok. I see.β
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Daily Spoon Count 5/10
Pain Level 3/10
Another night of lousy sleep. I have to stock up on groceries today, especially heavy items since I won't be able to lift much after surgery. T-minus 4 days. I'm just dreading it. Be kind to yourself and others #spoonsky #IBD #ChronicIllness #disabled #grief
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Daily Spoon Count 5/10
Pain Level 3
I slept but didn't rest. Today I have to go get my will done before surgery, guh. From now until Mar.25th I will be unmedicated for my IBD, and that's scary for me. Be kind to yourself and others #disabled #IBD #cPTSD #grief #chronicillness #spoonsky #pain
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Daily Spoon Count 6/10
Pain Level 3/10
Pre-op blood work and ECG. I need to find out what I can take for my IBD re: my surgery. I can't take the Stelara, without it I will be in an uncontrolled flare. Guh! Be kind to yourself and others #IBD #disabled #grief #spoonie #spoonsky #chronicillness
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Daily Spoon Count 7/10
Pain Level 2/10
Had a massive panic attack last night, felt like a heart attack. Just over a week to my surgery. I'm really hating this...6-8wk recovery time. Terrified of malpractice. Be kind to yourself and others today #disability #IBD #Spoonsky #chronicillness #grief
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Daily Spoon Count 6/10
Pain Level 2
Got some sleep last night, but I'll be napping today. I need to be healthy for my upcoming surgery, guh. Living with #chronicillness is like being in a fight to the death with your own body. Be kind to yourself and others today #IBD #disabled #spoonsky #spoonie
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Daily Spoon Count 7/10
Pain Level 2/10
Finally got some sleep, thank f**k! I have some stuff to do today, I need a haircut in a big way! Still obsessing over this surgery. Big anxiety. Therapy tonight. Be kind to yourself and others today. #IBD #spoonsky #disabled #invisibleillness #grief #widowed
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Daily Spoon Count 5/10
Pain Level 2/10
Not enough sleep, no decent nap yesterday. It's going to be a low key day. My heart goes out to the #disabled and elderly in the US losing Medicare and Medicaid. Be kind to yourself and others today #spoonsky #IBD #chronicillness #grief #spoonie
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Daily Spoon Count 5/10
Pain Level 2/10
My #anxiety is off the charts, mostly the surgery and the tariffs and disgust at the death of our relationship with the US. I slept, but not well. Having a good friend over today to discuss help post op. Be kind to yourself and others today #IBD #spoonsky
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Daily Spoon Count 7/10
Pain Level 2/10
Back to baseline. Day 1 of a trade war. More preparations for my surgery and recovery. Mind is running 1000mph. Yesterday was productive so I feel pretty good about it. Take the wins! Be kind to yourself and others today #spoonsky #IBD #chronicillness #grief
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Daily Spoon Count 6/10
Daily Pain Level 2/10
I slept, but didn't rest well and was up super early. I'm also anxious about my upcoming surgery. Afraid more like it. Going back to bed soon for an hour or so, then I have things to do. Be kind to yourself and others today. #spoonsky #IBD #chronicillness
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Daily Spoon Count 7/10
Daily Pain Level 2/10
A nice baseline day, I'll take it. Still very nervous about my upcoming surgery though, I have no caregiver anymore after my wife passed. Anxious. Be kind to yourself and others today. #spoonsky #disabled #grief #IBD #chronicillness #widowed
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Daily Spoon Count 7/10
Daily Pain Level 2/10
I really slept in, wow! But I woke with a headache and dehydrated. I'm swilling water. I gotta take a run to the shore to get some measurements for my store display. Good day! Be kind to yourself and others today #IBD #spoonsky #disability #chronicillness
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Daily Spoon Count 7/10
Daily Pain Level 2/10
I had a good sleep and have some energy today so that's a win. Emotionally, today is rocky so far. I'm angry and feeling betrayed by Canada's supposed allies. Be kind to yourself and others today. #spoonsky #IBD #disability #chronicillness
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Daily Spoon Count 7/10
Daily Pain Level 2/10
7hrs of sleep and finally got to baseline. Had some roofers come by and get the ice off the roof and the damage isn't as bad as it could be, so that's a win. Be kind to yourself and others today #IBD #chronicillness #spoonsky #chronicfatigue #littlewins
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Daily Spoon Count 6/10
Daily Pain Level 2/10
Oof, I stayed up and watched the debate, I did sleep just not as long as needed. Discovered ice damming yesterday, so I have some phone calls today, guh. Be kind to yourself and others today #IBD #spoonsky #disabled #chronicillness #widower #grief #stress
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Daily Spoon Count 6/10
Daily Pain Level 2/10
Had a pretty good sleep last night and have a bit more energy, which is good 'cause I gotta go to Costco. Missed the debate last night, too tired. Be kind to yourself and others today #IBD #chronicillness #spoonsky #disability
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Shoveled the last of the ice off of my back deck and my spoons are really, really low. Time for a very much needed nap. #spoonie #spoonsky #disability #IBD
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Oof, front deck is done. I'm taking a break and I gotta go to Costco. The $200 Store. Then if I have spoons, I get to shovel the back deck. Oh. Joy. #spoonsky #disabled #snowstorm #IBD #chronicillness #fatigue
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My feet up on a wall. I have red plad pants and white socks.
Mom recommended i do this for my feet when they get really cold. She said it helps circulation so they earm back up. Idk the science, but it seems to work when my feet are cold, like ice and hurt.
#chronicillness #disability #disabled #spoonie #spoonsky
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Daily Spoon Count 4/10 really low energy day and my innards are making creaking sounds. I'm staying close to home today, specifically the bathroom. My heart breaks for LA. Be kind to yourself and others today #IBD #spoonsky #disability #grief #chronicillness
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Daily Spoon Count 6/10 I slept pretty good last night was only up once, but I'm low on spoons. I feel like I am getting sick, hopefully just a cold but I'm laying low today out of caution. Emotionally I have like, 3 spoons tops. Be kind to yourself and others today. #grief #disability #spoonsky
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