Single-Cell Transcriptomic Analysis Reveals ISG15 as a Key Regulator of Macrophage-Mediated Inflammation Driving Primary Sjögren's Syndrome Progression

www.dl.begellhouse.com/journals/2ff...

#SjogrensDisease #SingleCellRNA #Immunology

New research in #SjogrensDisease uses salivary & serum #Proteomics to link biomarkers with #HLA alleles and autoantibodies. Large-scale, multi-omic analysis like this reveals a dynamic immune record, paving the way for high-resolution patient stratification.

doi.org/10.1016/j.ar...

"But That's Normal For Me" (Why I Mistook Dengue Fever For A Lupus Flare). www. a chronic voice .com

“it’s easy to see why #Lupus ( #SLE ) is known as ‘the great imitator’ (tho #SjogrensDisease does have close overlaps as well for me). Just about any generic symptom could be caused by Lupus, ranging from something simpler..to more severe such as #HemolyticAnaemia.”: buff.ly/HC8r5u0

Infographic showing the top 3 podcast episodes from the AiArthritis Voices 360 Talk Show. Features Episodes 106 on Undifferentiated Disease, 108 on Neurological Symptoms in Lupus and Sjogren's, and 111 on EULAR 2025 Research Updates.

What episode was your favorite in 2025? Let us know in the comments! In 2025, we hosted 12 episodes on topics that matter most to the AiArthritis disease community. To listen, visit zurl.co/cevIr

#AiArthritis #UndifferentiatedDisease #Lupus #SjogrensDisease #EULAR2025 #ChronicIllness #HealthPodcast

Why Your Daily Habits With Sjögren’s Syndrome Matter

"The most significant challenge that comes with #Sjögrens is #dryness, which can significantly affect the mouth, eyes, nose, and vagina. This isn’t just uncomfortable; it can lead to reduced #EmotionalHealth.": buff.ly/FP4ECwt

via @healthcentral.bsky.social
#ChronicIllness #SjogrensDisease

The Making of a Podcast — Smart Patients Ever wonder what it’s really like to record your first podcast? Hear from three Smart Patients community members who did just that—and shared every surprise, tech hiccup, and empowering moment behind...

My podcast experiences as a #Sjogren's patient advocate sharing my personal journey w/Sjogren's on Table Talk on Health #Sjogrensdisease #chronicillness #autoimmunedisease #Sjogies #spoonies @smartpatients.bsky.social research.smartpatients.com/resources/th...

Do I have actually have a known MS mimic? Part 2 Today I attended my retiring GP, who is an attentive listener, as referenced in previous post. I’m in good form mentally, but have been feeling ever more “out of condition” and generally weak. He w…

msmartinecom.wordpress.com/2025/12/16/d...

#Sjögrens #SjogrensDisease #multiplesclerosis #dyspnea #InterstitialLungDisease #heartfailure #blog #disability

Why Your Daily Habits With Sjögren’s Syndrome Matter

“When #dryness is a prob, the person’s life is..disrupted due to lack of #lubrication of these highly impactful system..may hurt to blink, or speech could be affected..The person is constantly reminded of the disorder.": buff.ly/FP4ECwt

via @healthcentral.bsky.social
#SjogrensDisease #ChronicPain

Analytical and clinical comparison of four SLE-associated autoantibodies in different autoimmune diseases - Scientific Reports Scientific Reports - Analytical and clinical comparison of four SLE-associated autoantibodies in different autoimmune diseases

"In summary, #SLE-associated #autoantibodies are present in patients with other immunological diseases, especially [ #SjogrensSyndrome ] patients, and have a major impact on diagnostic efficiency.": buff.ly/1HtFAz4

#SjogrensDisease #lupus #MedSky
via @nature.com

FLaB promo for this gig. Text reads: Since 2013, Rare Patient Voice has awarded patients and caregivers over $15,000,000! Rare Patient Voice is looking for patients for a PAID opportunity to share their experience WHO Male patients diagnosed with Sjögren's Syndrome WHAT 60-minute in-person interview COMPENSATION $120 Visit rarepatientvoice.com/Buttahfly for details. Float Like a Buttahlly

RPV needs YOU!
@rarepatientvoice.bsky.social is looking for patients for a paid opportunity:

🗣 Male patients with #SjogrensSyndrome
⌚ 60-minute in-person interview
💵 $120 compensation

Visit rarepatientvoice.com/Buttahfly to sign up!
~🦋
#ChronicIllness #Sjogrens #SjogrensDisease #SpoonieSky

Classes — Table Talk on Health

I was honored to be interviewed for The Table Talk on Health podcast w/Caroline Pardo (last episode on bottom) and shared my journey & patient experience with #sjogrensdisease #sjogrens #tabletalkonhealth Pls share w/other patients & physicians who would benefit! www.tabletalkonhealth.com/tabletalks

💙 Raise awareness. Share strength. Today is #SjogrensAwarenessDay—let’s stand with those facing this invisible autoimmune disease.

#SjogrensDisease #AiArthritis

Are you celebrating any of these? Learn more about AiArthritis Disease awareness dates on a Global Awareness Page: www.aiarthritis.org/awareness-days

#SjogrensAwareness #SjogrensDisease #AiArthritis #JIA #KidsGetArthritisToo #ChronicDisease #ChronicDiseaseAwarenessDay

Argenx presents new efgartigimod data at EULAR 2025 - PharmaTimes Rheumatology studies show promising results for Sjogren’s disease

#pharmaceuticals #Rheumatology #NeuromuscularDisease #Argenx #efgartigimod #efgartigimoddata #EULAR2025 #Sjogrensdisease #myositis #FastTrackdesignation #primarySjogrensdisease #ALKIVIAstudy #myositispatients #FcRninhibitor #UNITYtrial
pharmatimes.com/news/argenx-...

Exploring the Subtle Manifestations and Diagnostic Challenges of Sjogren's Syndrome Sjogren's Syndrome is an autoimmune disorder that often goes unnoticed, yet it can profoundly affect the lives of those it touches. This condition primarily impacts the body's moisture-producing gland...

www.maureensullivanrn.com/single-post/...

#sjogrenssyndrome
#sjogrensdisease
#autoimmune

No change in the 10 months I’ve been participating in a study for pacing for people with invisible illnesses, but it shows my truths and gives me data to show providers. Thanks Visible. #longcovid #fibromyalgia
#chronicfatigue/ME/PEM
#Sjogrensdisease

New #Feed: #Sjogrens #Sjogren's #Sjögren's #SjD #SjS #pSS #SjogrensDisease #SjogrensSyndrome #SjogrensFoundation

Exploring the latest research on #Sjogrens and emerging treatments, patient experiences, advocacy updates, and insights to improve understanding and care.

bsky.app/profile/did:...

Venus Williams on Living With Sjogren’s Disease Venus Williams was the keynote speaker at the Vision Expo East, where she spoke about her autoimmune disease, Sjogren’s syndrome.

“sometimes you don’t have as much to give. You can still try, and even if you can’t give a lot, whatever you give that day or that moment will add up. Just keep #giving something": https://buff.ly/3QyMZwX #VenusWilliams #SjogrensDisease #Chronicillness #awareness via @newbeauty.bsky.social

Bone erosion seen in over half of women with Sjögren's: Study More than half of women with Sjögren’s disease have loss of bone tissue, or bone erosion, according to a study from Brazil.

““The findings of this study demonstrate a high prevalence of joint erosions in patients with [ #SjogrensDisease], challenging the traditional view of [ #Sjogrens] as a non-erosive disease,” the #researchers wrote": https://buff.ly/3DaL9iR #MedSky #autoimmune

#chronicillness #sjogrensdisease

If anyone with Sjogrens is seeing this, please give me some tips. I have some that help, but I'm always looking to up my game.

‘My own diagnosis was delayed’: Sjögren’s myths overshadow multi-system manifestations Despite being one of the most prevalent autoimmune diseases in the United States, Sjögren’s disease remains shrouded behind significant misconceptions and knowledge gaps that can delay diagnosis and…

“The classification criteria must be updated to reflect the multisystem nature of #Sjögrens. The criteria should incorporate #systemic features..that support a #diagnosis in the absence of #sicca": https://buff.ly/3NlDWhw via @gohealio.bsky.social #SjogrensDisease

Sjögren's Recognized as a Disease, What's Next for Patients and Research? Sjögren's Disease: What's next for patients and future research? The Arthritis Dietitian's lessons from #ACR24

#sjogrensdisease: what's next for patients and research? My lessons from #ACR24

@neurosjogrens.bsky.social
@sjogrensaustralia.bsky.social
@creakyjoints.bsky.social

www.arthritisdietitian.com/post/sj%C3%B...

Sjögren’s: the patients’ perspective Editorials; Authors: K.M. Hammitt

Sjogren's: The Patient's Perspective
www.clinexprheumatol.org/abstract.asp...

#sjogrens #sjogrensdisease #autoimmune

Name changes for Sjögren’s, axial spondyloarthritis ‘a big deal’ for researchers, patients “Ankylosing spondylitis”? “Sjögren’s syndrome”? These terms may soon take on an antiquated feel not unlike “shell shock” or “consumption,” as both...

Syndrome no more. Sjogren's Disease 🙌

I felt deeply honored to be at #ACR24 when #Sjogrens was officially recognized as a Disease. After years of telling my doctors that my GI symptoms are related to SjD, this feels like a huge WIN.

#sjogrensdisease

www.healio.com/news/rheumat...

Tufts University Study This is a non-invasive, non-interventional, study to identify the different substances (i.e., biomarkers) that can be isolated from the fluid, including the sweat, in the top layers of the skin of the palm of your hands. These substances in your skin may someday serve as new markers that can inform clinicians about Sjogren’s Syndrome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The study is looking for volunteers who are between the ages of 30 and 70. Participants can have Sjogren’s Syndrome, ME/CFS, or be otherwise healthy. Study involvement includes providing a sweat and saliva sample in person and mailing a sweat sample to Tufts. Participants who complete all study procedures can receive up to $75 in gift cards. For the in-person visit, qualifying parking can be covered. For more information, contact: Dr. Addy Alt-Holland (617) 636-3931

#Massachusetts
From the MassME newsletter

ME/CFS & Sjogren’s Syndrome Research Study at Tufts University Study.

Healthy controls also sought.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SS #Sjögrens #Sjogrens #SjogrensDisease #SjögrensSyndrome #SjogrensSyndrome